Hi! My name is Cynthia. I have Pseudotumor Cerebri (Benign Intrcranial Hypertension). I have a Lumber Shunt in my back. It has not worked in 2yrs now. I have been trying to get the doctors to beleive me That it was not working. I could tell by the amout of pain I am in & now again losing more vison. Finally, In Janurary I found a Neurosurgeon that would fix my shunt. My husband & I were so happy that after all this time a doctor listened & said ” YES” that he would fix it. So now to the video! On Jan. 25, He went in to replace the shunt & couldn’t. The old shunt is now fused to my spine. So he had to put in a new one. Then on Jan. 31, that shunt came apart & was draining fuild on my spine. The fuild should drain into my abdomen. He told us that he has never had that happen before. So on Feburary 5, he went back in & had to fix it. Now it is draining on my spine again. I am in a lot of pain in my back & abdomen.The hospital & the surgeon say that it is ok that my body will absorb it. This ball of fuild has not gone down & now it is at the largest size we have seen so far. I’m not sure how much longer I can wait. They seem to think that nothing is worng. I can’t get any help. So we are at a stand still. What am I to do if the doctors will not help me? I did end up going back. I let the same Dr. cut on me again. 4/20/2009. Things are going OK, but the didn’t put do on paper what happened & what went wrong. I think that sounds funny. Do you?
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